This
page describes a research study conducted by
Dr. Kirk Warren Brown, Principal
Investigator, in the Department of
Psychology, and Dr. Connie Coogle,
Co-Principal Investigator, in the Virginia
Center on Aging, both of Virginia
Commonwealth University.
The study is a
survey of the psychological needs of family
caregivers of persons with Alzheimer’s
Disease. Your participation is highly
valued.
The findings of the survey will be used to
help develop a new support program for
caregivers who are family members (spouse,
sibling, child, parent, or other relative)
of a person with Alzheimer’s.
If you
are at least 18 years of age and wish to
participate, please complete the survey that
will display on your computer station after
you click the “Access Survey” button below.
You do not need to acknowledge your
willingness to participate.
The survey
should take about 10 minutes to complete.
We would like you to answer all the
questions, but you may skip any questions
that you don’t feel comfortable answering.
Also, your responses will not be saved and
recorded until you click the “Submit your
survey” button at the end of the survey.
This means that the survey must be completed
in one sitting.
We will not tell anyone the answers you give
us; however, information from the study may
be looked at or copied for research or legal
purposes by Virginia Commonwealth
University. Your responses, however, will
never be linked to you personally. All
survey responses that you provide will be
completely anonymous and we will not have
any way to link your answers back to you.
All survey information will be stored using
randomly generated identification numbers.
What we find from this study may be
presented at meetings or published in
papers, but your name will not ever be used
in these presentations or papers.
You can be
entered into a lottery to win one of 5
prizes of $10 Amazon.com gift cards after
completing this survey.
You can also request a copy of the survey
findings. To be entered into the lottery
and/or to receive the survey findings, your
name and contact information (e-mail
or postal mail address)
will be required at the end of the survey.
However your name and contact
information will not be linked with your
survey responses, nor will we share your
name or contact information with anyone for
any reason. The only individuals who will
have access to the data are trained study
personnel.
There are
minimal risks to you by filling out the
survey.
This survey concerns the psychological
support needs of Alzheimer’s family
caregivers.
You will be
asked to answer questions that are no more
personal than those pertaining to your
psychological experiences of caregiving,
interests in various support program
features, and basic demographic
characteristics. The risks are not greater
than the risks associated with daily
living. There is an opportunity for you to
gain some psychological insight into your
caregiving experience and behavior and
completing the survey will help us design a
good quality support program that better
meets the psychological needs of Alzheimer’s
family caregivers.
Participation
in this study is voluntary.
If you choose to participate, you may stop
at any time without any penalty.
You will
receive opportunity to enter the lottery
whether you complete the survey or not.
For more
information concerning this research you
should contact Dr. Brown by e-mail at
kwbrown@vcu.edu or by postal mail at
Department of Psychology, Virginia
Commonwealth University, 806 W. Franklin
St., Richmond, VA, 23284.
If you have any
questions about your rights as a participant
in this study, or you have general
questions, concerns, or complaints about the
research, you may contact: Office for
Research, Virginia Commonwealth University,
800 East Leigh Street, Suite 113, P.O. Box
980568, Richmond, VA, 23298. Telephone:
804-827-2157.
Before continuing, you may wish to print a
copy of this page for your personal
record-keeping.
Yes, I am at least 18 years old, I have read
and understand this Information Form, and I
am ready to participate.
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